Okay so I know it has been a while since I posted last but honestly nothing exciting has happen. We have been continuing the GSE except for when we went upstate last week I didn't give it to him while we were up there I wanted him to be as easy going as possible while we were there and he did pretty good. Next time we go I will definitely be taking gates with us so I can keep him out of the kitchen, he had 2 infractions and boy did we pay for them. Within a couple hours he was literally bouncing off the walls crazy.
Today is a new day after a long weekend so I started the GSE back up he will get his first dose at breakfast this morning at school and I will give him his second dose when he gets off the bus. I couldn't tell you if the penis playing has decreased any but boy has he been irritable! I think we are finally going through withdraws. I was hoping we wouldn't have any but I totally understand why he is having such a hard time. It takes approximately 3-4 weeks to completely rid the body of casein (milk protein) and 3-4 months for the gluten, we are at about week 3, and since none of his infractions were with casein I am confident that at this point his body is casein free thus the beginning of the withdraws. His mood has just fluctuated, little things like me shutting off the screen saver really upset him and cause meltdowns that I haven't seen in quite a while. Also being that today is a new day I decided to try some new cream I got, it is called MSM cream, aka calming cream. Basically MSM is a natural occurring source of sulfur, which most (not all, everyone is different) AI kids are deficient in. I put some on his feet and his back before I dressed him today, he wasn't thrilled at all about the whole thing but we will see how it goes, I am not expecting miracles (that isn't why I do any of this by the way) but I am hoping it will help him cope with the withdraw symptoms, I can tell that he hates to meltdown you can see it in his eyes, he doesn't like to do it and when he does he just looks at you like "can't you help me, can't you stop this" it breaks my heart, I just hold him and rock him until he settles down so I am crossing my fingers that the cream helps alleviate some of his discomfort.
A little off topic but a little on topic I plan on detoxing my body in the next couple weeks. My digestive system has not been right ever since middle school when my bff and I thought it would be "cool" to be anorexic, needless to say it was not cool and didn't last more than a couple months but it was long enough to screw with me for life so I am going to try and reset my body so I can live "normally" (if that is even possible) or at least be able to eat with out getting Ebola (thats what I call my misery) I am just waiting to start my detox plan until I start my period, I have all the PMS symptoms I just need it to start and get it over with, I am already technically now 2 days late but we aren't panicking last month was a screwed up month for me so we will see, I won't panic until after the 4th. Anyways I don't want to detox while on it because that would just be torture for Chris and I love him too much to put him through all that! Once I am done detoxing I will be giving up casein, gluten, refined sugar, caffeine of any kind, and I am going to try my hardest to avoid Chris while he is smoking (if only he'd quit) which means I can't go on the porch until the smoke clears and he won't be allowed to smoke in the car with me. We will see how everything goes I will keep everything logged and updated so I can see if I am just crazy or if it is really helping.
Monday, March 31, 2008
Tuesday, March 18, 2008
Win, Win, and Win
Okay so I have finally won some battles, it only took 5 years but I finally won some!! Okay from the beginning I went out to get food for our "special" eaters and I thought I would try a few new things.
#1 I got hamburger buns by EnerG and Chase LOVES them!! He finally will eat a peanut butter and jelly sandwich again! Which of course are his favorite.
#2 I got small travel bottles of Sunny Delight (yeah I know not the best anyways....) knowing he would probably drink them plus he has never had them before so with the addition of 6 drops of GSE (for the yeast problem I know he has) he drank the entire bottle....YAY!!! So know we are actively fighting his yeast problem and it is working we finally got our first yeasty poop today, yeah I know gross but I was thrilled.
#3 In general the diet is going great, I couldn't ask for anything more at this point.
I did order from another mom so supplements so to get those into him my mom had the great idea of getting a different flavored Sunny Delight! Perfect! Now I can get in his probiotic, calcium/magnesium and olive leaf extract. We have finally taken our first steps on our long road that we have ahead of us.
As for his behaviors at this point, since he has been home from school I haven't seen him grabbing/slapping his penis as much as yesterday (it was constant yesterday) he is still bouncing off the couch and the trampoline but it isn't as bad today. Each day is a new victory.
#1 I got hamburger buns by EnerG and Chase LOVES them!! He finally will eat a peanut butter and jelly sandwich again! Which of course are his favorite.
#2 I got small travel bottles of Sunny Delight (yeah I know not the best anyways....) knowing he would probably drink them plus he has never had them before so with the addition of 6 drops of GSE (for the yeast problem I know he has) he drank the entire bottle....YAY!!! So know we are actively fighting his yeast problem and it is working we finally got our first yeasty poop today, yeah I know gross but I was thrilled.
#3 In general the diet is going great, I couldn't ask for anything more at this point.
I did order from another mom so supplements so to get those into him my mom had the great idea of getting a different flavored Sunny Delight! Perfect! Now I can get in his probiotic, calcium/magnesium and olive leaf extract. We have finally taken our first steps on our long road that we have ahead of us.
As for his behaviors at this point, since he has been home from school I haven't seen him grabbing/slapping his penis as much as yesterday (it was constant yesterday) he is still bouncing off the couch and the trampoline but it isn't as bad today. Each day is a new victory.
Sunday, March 16, 2008
Infractions are inevidable
Well I didn't get to post yesterday due to the fact that I cleaned the entire house, mostly the upstairs it really just needed some serious organizing which is what takes the longest but it is all done and all I have left is to clean the rug in the boys room. Good thing is I have a huge box for goodwill.
So what has went on in the past couple days? Well I knew it was too good to be true, it started with him using a chair to get into the cupboards and stealing hotdog buns in the morning and ended with him stealing some cheese and tortillas while I was setting the table for dinner. So we are back at the beginning. I did start everyone on probiotics, everyone takes them fine except for Chase am I surprised? No. I bought a powder form so I can mix it in with things but I am thinking I am going to have to go a head and buy the liquid form I found, the only thing is the powder has 3 billion a serving and the powder has 5. I wish I could get him to take pills so I could get him the 50 billion which is what he really needs.
Behaviors haven't changed any, he is still jumping alot but I have got him to stay off the couch by putting the trampoline back in the living room so he will jump on that instead. He has literally rubbing his penis raw by hitting it and pulling on it so I don't know what to do about that, I was hoping the probiotics would help with the yeast, my next option is to try biotin. If that doesn't work I will try to take him into our quack dr and try to explain to him that I want him tested for yeast so I can get an antibacterial for it so we can just be done with it. I am really wishing right now I had a DAN dr.
So what has went on in the past couple days? Well I knew it was too good to be true, it started with him using a chair to get into the cupboards and stealing hotdog buns in the morning and ended with him stealing some cheese and tortillas while I was setting the table for dinner. So we are back at the beginning. I did start everyone on probiotics, everyone takes them fine except for Chase am I surprised? No. I bought a powder form so I can mix it in with things but I am thinking I am going to have to go a head and buy the liquid form I found, the only thing is the powder has 3 billion a serving and the powder has 5. I wish I could get him to take pills so I could get him the 50 billion which is what he really needs.
Behaviors haven't changed any, he is still jumping alot but I have got him to stay off the couch by putting the trampoline back in the living room so he will jump on that instead. He has literally rubbing his penis raw by hitting it and pulling on it so I don't know what to do about that, I was hoping the probiotics would help with the yeast, my next option is to try biotin. If that doesn't work I will try to take him into our quack dr and try to explain to him that I want him tested for yeast so I can get an antibacterial for it so we can just be done with it. I am really wishing right now I had a DAN dr.
Thursday, March 13, 2008
Day 6- for lack of a better title
We have a word!!!!! Chase tonight said a word and real word and I heard it with my own ears!!!!! He brought me a strip of PECS pictures with various foods on them, I asked him what he wanted and he then pointed at the taco and said "taco" I immediately started crying, I ran outside and told Chris I couldn't believe it!!! I still can't believe it!! We are on day 6 of the diet, his last infraction was 5 days ago other than that he has been perfect!!! I am so excited words can't even describe!! On another awesome note tonight I got him to drink rice milk! This is HUGE! He hasn't had any milk in 6 days I am out of juice so I figured I would give him some but not let him see my pour it, well it worked he drank it!!! His behaviors are still mostly the same, jumping on the couch, playing with himself, ect. He seems to be eating more, still mostly cereal but I am keeping as much of a variety as I possibly can. I made him some granola bars and jello tonight and he thought that was cool, especially the jello.
Now on to Miss Trinity it is harder to keep her from having infractions than Chase!! It seems like we have a few good days then all the sudden she will have stolen one of the other kids milk and is drinking it. Being that she is so young she doesn't understand that the milk makes it hard for her to breathe and makes her nose run and her chest fill up so she coughs. So far though I have been able to add eggs back into her diet as long as they are in moderation which makes baking a little bit easier for me. I also had to cancel her drs appointment tomorrow because the van is broke again, honestly it is fine with me I was going to refuse her vaccinations anyways because she still isn't feeling well and I am not going to overload her immune system, I learned that lesson the hard way.
I am going to call the drs office tomorrow to see if Calista's lab work is back, I am really anxious to see her results, almost more than I was with Chase's. Probably because I was expecting Chase to have issues with his body. Next week Spencer goes in for his lead test and I will request the same tests for him they ran on Calista, Chase and Trinity, all is fair in a family full of allergies.
I am also on the edge of my seat for the new book I bought to get here. I am just finishing Dr. Bocks book, boy do I wish I could see him and have him treat Chase, if only I lived in New York. Anyways I got a new book that is just about the different supplements that have been found to help and what symptoms they help. By the time I get that book and start it we should be on the diet for about 2 weeks, I really want to wait a full 3 weeks before starting any supplements on any of the kids for a couple reasons:
#1 it takes 3 weeks at a minimum for casein to leave the body, longer for gluten more like 3 months but I am not waiting that long
#2 by the end of 3 weeks I should have everyones test results back so I know what problems each child has and from there I can cater to their diets and add supplements as needed.
#3 I need that 3 weeks for my research time, baking time, and for any chance of Chase going through withdrawl to be over with (so far we haven't had any problems but it is ONLY day 6)
One last thought for the night. I learned tonight that one of the symptoms of yeast overload is cracking of the skin on fingers and toes. This was like a light bulb moment for me. I had a feeling that Spencer has a yeast problem. His belly is always bloated, he is the gassiest person in the world, and his stool shows signs of yeast. Add in the fact that his toes have been cracking, and not just little cracks, huge cracks in the skin on the top of his toes but they never bleed (and in my opinion are big enough that they should) I am now definately sure that he has a yeast problem. So taking care of both my yeasty beasty's is top priority on my list once we get their diets straight.
On a side note the book I am just finishing reading is:
Healing the New Childhood Epidemics; Autism, ADHD, Asthma and Allergies The Groundbreaking Program for the 4-A Disorders by Kenneth Bock and Cameron Stauth
and the one I just bought is:
Autism: Effective Biomedical Treatments (Have we done everything we can for this child? Individuality in an Epidemic) by Jon Pangborn
Now on to Miss Trinity it is harder to keep her from having infractions than Chase!! It seems like we have a few good days then all the sudden she will have stolen one of the other kids milk and is drinking it. Being that she is so young she doesn't understand that the milk makes it hard for her to breathe and makes her nose run and her chest fill up so she coughs. So far though I have been able to add eggs back into her diet as long as they are in moderation which makes baking a little bit easier for me. I also had to cancel her drs appointment tomorrow because the van is broke again, honestly it is fine with me I was going to refuse her vaccinations anyways because she still isn't feeling well and I am not going to overload her immune system, I learned that lesson the hard way.
I am going to call the drs office tomorrow to see if Calista's lab work is back, I am really anxious to see her results, almost more than I was with Chase's. Probably because I was expecting Chase to have issues with his body. Next week Spencer goes in for his lead test and I will request the same tests for him they ran on Calista, Chase and Trinity, all is fair in a family full of allergies.
I am also on the edge of my seat for the new book I bought to get here. I am just finishing Dr. Bocks book, boy do I wish I could see him and have him treat Chase, if only I lived in New York. Anyways I got a new book that is just about the different supplements that have been found to help and what symptoms they help. By the time I get that book and start it we should be on the diet for about 2 weeks, I really want to wait a full 3 weeks before starting any supplements on any of the kids for a couple reasons:
#1 it takes 3 weeks at a minimum for casein to leave the body, longer for gluten more like 3 months but I am not waiting that long
#2 by the end of 3 weeks I should have everyones test results back so I know what problems each child has and from there I can cater to their diets and add supplements as needed.
#3 I need that 3 weeks for my research time, baking time, and for any chance of Chase going through withdrawl to be over with (so far we haven't had any problems but it is ONLY day 6)
One last thought for the night. I learned tonight that one of the symptoms of yeast overload is cracking of the skin on fingers and toes. This was like a light bulb moment for me. I had a feeling that Spencer has a yeast problem. His belly is always bloated, he is the gassiest person in the world, and his stool shows signs of yeast. Add in the fact that his toes have been cracking, and not just little cracks, huge cracks in the skin on the top of his toes but they never bleed (and in my opinion are big enough that they should) I am now definately sure that he has a yeast problem. So taking care of both my yeasty beasty's is top priority on my list once we get their diets straight.
On a side note the book I am just finishing reading is:
Healing the New Childhood Epidemics; Autism, ADHD, Asthma and Allergies The Groundbreaking Program for the 4-A Disorders by Kenneth Bock and Cameron Stauth
and the one I just bought is:
Autism: Effective Biomedical Treatments (Have we done everything we can for this child? Individuality in an Epidemic) by Jon Pangborn
It's Day 5 Already!!!!
Okay so today is day 5 and we have only had 1 infraction that I know of.........yeah!!!!!! This is so cool and he is doing alot better than last time!!! I am really excited, he even seems to be eating more things, he is still limiting himself to carbs but I still think that is because he has a serious yeast issue I need to deal with, I just don't know how I am going to deal with it yet. I am excited though that things are going so well! I just hope it continues. I need to make a note of his behavior as of today, he is CONSTANTLY jumping on the couch, throwing himself on the couch and is still OBSESSED with his penis, both of these things are really driving me crazy!!
On the flip side of things I think Trinity is having a reaction to soy. She still isn't any better and she has a new rash. Friday she goes to the doctor and I plan on refusing vaccinations just until she is completely over her cold or whatever it is that is compromising her immune system. We will see how that pans out.
On yet another note I had Calista's appointment today and I got them to do blood work on her, they ordered a CBC, IgE and Pediatric RAST so I will find out if she has any issues that I need to know about, so of course I am anxious for those results. Then Spencer goes next week so I will request the same things for him, then I will know everything I can about my children, that will make me very very happy!!!
On the flip side of things I think Trinity is having a reaction to soy. She still isn't any better and she has a new rash. Friday she goes to the doctor and I plan on refusing vaccinations just until she is completely over her cold or whatever it is that is compromising her immune system. We will see how that pans out.
On yet another note I had Calista's appointment today and I got them to do blood work on her, they ordered a CBC, IgE and Pediatric RAST so I will find out if she has any issues that I need to know about, so of course I am anxious for those results. Then Spencer goes next week so I will request the same things for him, then I will know everything I can about my children, that will make me very very happy!!!
Monday, March 10, 2008
Our Weekend
Well we started on Saturday being officially gluten and casein free again. I am also adding in a few more foods he can't have so we can get rid of the yeast that I know is living in his body. Saturday went well, all he would eat was a cereal that I got and drink juice. Today on the other hand not so good. I asked Chris to put up the gate in the kitchen on his way out of the house this morning and he didn't so I woke up to Chase devoring a bag of Oreo's. Not good, so we have already had our first infraction, atleast it is early on and not like a month in that would make me really unhappy. I tried giving the GSE again but it didn't work out so I am going to have to attack the yeast a whole new way. I am thinking probiotics, I know I can find a powder I can sneak into something. I am prepared for him to starve himself thinking he is going to win this battle. Well he is not I am not going to let Autism run his life any longer, I know I can recover him and I am making it my full time job to do. I just have to make sure the school is on board I am going to write his teacher a letter tonight on the foods he can not eat according to the allergy results. We are heading into a huge fight but I am prepared this time, I also know that he weighs right now 42 pounds so I can track his weight. I think I am going to start making smoothies for snack when he gets off the bus and making him wake up in the morning and eat breakfast before school so he isn't starved all day with his limited intake at school. I will keep my journal here so I can record and keep track of his progress and inbetween everything else I am going to start researching supplements, enzymes, etc to help him with other issues including stims.
I am the Child
I AM THE CHILD
I AM THE CHILD WHO CANNOT TALK.
YOU OFTEN PITY ME, I SEE IT IN YOUR EYES.
YOU WONDER HOW MUCH I AM AWARE OF--I SEE THAT AS WELL.
I AM AWARE OF MUCH, WHETHER YOU ARE HAPPY OR SAD OR FEARFUL,
PATIENT OR IMPATIENT, FULL OF LOVE AND DESIRE, OR IF YOU ARE JUST
DOING YOUR DUTY BY ME.
I MARVEL AT YOUR FRUSTRATION, KNOWING MINE TO BE FAR GREATER,
FOR I CANNOT EXPRESS MYSELF OR MY NEEDS AS YOU DO.
YOU CANNOT CONCEIVE MY ISOLATION, SO COMPLETE IT IS AT TIMES.
I DO NOT GIFT YOU WITH CLEVER CONVERSATION,
CUTE REMARKS TO BE LAUGHED OVER AND REPEATED.
I DO NOT GIVE YOU ANSWERS TO YOUR EVERYDAY QUESTIONS, RESPONSES OVER
MY WELL-BEING,
SHARING MY NEEDS, OR COMMENTS ABOUT THE WORLD ABOUT ME.
I DO NOT GIVE YOU REWARDS AS DEFINED BY THE WORLD'S
STANDARDS--GREAT STRIDES IN DEVELOPMENT THAT YOU CAN CREDIT
YOURSELF; I DO NOT GIVE YOU UNDERSTANDING AS YOU KNOW IT.
WHAT I GIVE YOU IS SO MUCH MORE VALUABLE--I GIVE YOU INSTEAD
OPPORTUNITIES.
OPPORTUNITIES TO DISCOVER THE DEPTH OF YOUR CHARACTER, NOT MINE; THE
DEPTH OF YOUR LOVE,
YOUR COMMITMENT, YOUR PATIENCE, YOUR ABILITIES;
THE OPPORTUNITY TO EXPLORE YOUR SPIRIT MORE DEEPLY THAN YOU IMAGINED
POSSIBLE.
I DRIVE YOU FURTHER THAN YOU WOULD EVER GO ON YOUR OWN,
WORKING HARDER, SEEKING ANSWERS
TO YOUR MANY QUESTIONS WITH NO ANSWERS.
I AM THE CHILD WHO CANNOT TALK.
I AM THE WHILD WHO CANNOT WALK.
THE WORLD SEEMS TO PASS ME BY.
YOU SEE THE LONGING IN MY EYES TO GET OUT OF THIS CHAIR,
TO RUN AND PLAY LIKE OTHER CHILDREN.
THERE IS MUCH YOU TAKE FOR GRANTED.
I WANT THE TOYS ON THE SHELF, I NEED TO GO TO THE BATHROOM, OH I'VE
DROPPED MY FORK AGAIN.
I AM DEPENDENT ON YOU IN THESE WAYS.
MY GIFT TO YOU IS TO MAKE YOU MORE AWARE OF YOUR GREAT FORTUNE,
YOUR HEALTHY BACK AND LEGS, YOUR ABILITY TO DO FOR YOURSELF.
SOMETIMES PEOPLE APPEAR NOT TO NOTICE ME; I ALWAYS NOTICE THEM.
I FEEL NOT SO MUCH ENVY AS DESIRE, DESIRE TO STAND UPRIGHT,
TO PUT ONE FOOT IN FRONT OF THE OTHER, TO BE INDEPENDENT.
I GIVE YOU AWARENESS.
I AM THE CHILD WHO CANNOT WALK.
I AM THE CHILD WHO IS MENTALLY IMPAIRED.
I DON'T LEARN EASILY, IF YOU JUDGE ME BY THE WORLD'S MEASURING STICK,
WHAT I DO KNOW IS INFINITE JOY IN SIMPLE THINGS.
I AM NOT BURDENED AS YOU ARE WITH THE STRIFE'S AND CONFLICTS OF A
MORE COMPLICATED LIFE.
MY GIFT TO YOU IS TO GRANT YOU THE FREEDOM TO ENJOY THINGS AS A
CHILD,
TO TEACH YOU HOW MUCH YOUR ARMS AROUND ME MEAN, TO GIVE YOU LOVE.
I GIVE YOU THE GIFT OF SIMPLICITY.
I AM THE CHILD WHO IS MENTALLY IMPAIRED.
I AM THE DISABLED CHILD.
I AM YOUR TEACHER. IF YOU ALLOW ME,
I WILL TEACH YOU WHAT IS REALLY IMPORTANT IN LIFE.
I WILL GIVE YOU AND TEACH YOU UNCONDITIONAL LOVE.
I GIFT YOU WITH MY INNOCENT TRUST, MY DEPENDENCY UPON YOU.
I TEACH YOU ABOUT HOW PRECIOUS THIS LIFE IS AND ABOUT NOT TAKING
THINGS FOR GRANTED.
I TEACH YOU ABOUT FORGETTING YOUR OWN NEEDS AND DESIRES AND DREAMS.
I TEACH YOU GIVING.
MOST OF ALL I TEACH YOU HOPE AND FAITH.
I AM THE DISABLED CHILD.
AUTHOR UNKNOWN
I AM THE CHILD WHO CANNOT TALK.
YOU OFTEN PITY ME, I SEE IT IN YOUR EYES.
YOU WONDER HOW MUCH I AM AWARE OF--I SEE THAT AS WELL.
I AM AWARE OF MUCH, WHETHER YOU ARE HAPPY OR SAD OR FEARFUL,
PATIENT OR IMPATIENT, FULL OF LOVE AND DESIRE, OR IF YOU ARE JUST
DOING YOUR DUTY BY ME.
I MARVEL AT YOUR FRUSTRATION, KNOWING MINE TO BE FAR GREATER,
FOR I CANNOT EXPRESS MYSELF OR MY NEEDS AS YOU DO.
YOU CANNOT CONCEIVE MY ISOLATION, SO COMPLETE IT IS AT TIMES.
I DO NOT GIFT YOU WITH CLEVER CONVERSATION,
CUTE REMARKS TO BE LAUGHED OVER AND REPEATED.
I DO NOT GIVE YOU ANSWERS TO YOUR EVERYDAY QUESTIONS, RESPONSES OVER
MY WELL-BEING,
SHARING MY NEEDS, OR COMMENTS ABOUT THE WORLD ABOUT ME.
I DO NOT GIVE YOU REWARDS AS DEFINED BY THE WORLD'S
STANDARDS--GREAT STRIDES IN DEVELOPMENT THAT YOU CAN CREDIT
YOURSELF; I DO NOT GIVE YOU UNDERSTANDING AS YOU KNOW IT.
WHAT I GIVE YOU IS SO MUCH MORE VALUABLE--I GIVE YOU INSTEAD
OPPORTUNITIES.
OPPORTUNITIES TO DISCOVER THE DEPTH OF YOUR CHARACTER, NOT MINE; THE
DEPTH OF YOUR LOVE,
YOUR COMMITMENT, YOUR PATIENCE, YOUR ABILITIES;
THE OPPORTUNITY TO EXPLORE YOUR SPIRIT MORE DEEPLY THAN YOU IMAGINED
POSSIBLE.
I DRIVE YOU FURTHER THAN YOU WOULD EVER GO ON YOUR OWN,
WORKING HARDER, SEEKING ANSWERS
TO YOUR MANY QUESTIONS WITH NO ANSWERS.
I AM THE CHILD WHO CANNOT TALK.
I AM THE WHILD WHO CANNOT WALK.
THE WORLD SEEMS TO PASS ME BY.
YOU SEE THE LONGING IN MY EYES TO GET OUT OF THIS CHAIR,
TO RUN AND PLAY LIKE OTHER CHILDREN.
THERE IS MUCH YOU TAKE FOR GRANTED.
I WANT THE TOYS ON THE SHELF, I NEED TO GO TO THE BATHROOM, OH I'VE
DROPPED MY FORK AGAIN.
I AM DEPENDENT ON YOU IN THESE WAYS.
MY GIFT TO YOU IS TO MAKE YOU MORE AWARE OF YOUR GREAT FORTUNE,
YOUR HEALTHY BACK AND LEGS, YOUR ABILITY TO DO FOR YOURSELF.
SOMETIMES PEOPLE APPEAR NOT TO NOTICE ME; I ALWAYS NOTICE THEM.
I FEEL NOT SO MUCH ENVY AS DESIRE, DESIRE TO STAND UPRIGHT,
TO PUT ONE FOOT IN FRONT OF THE OTHER, TO BE INDEPENDENT.
I GIVE YOU AWARENESS.
I AM THE CHILD WHO CANNOT WALK.
I AM THE CHILD WHO IS MENTALLY IMPAIRED.
I DON'T LEARN EASILY, IF YOU JUDGE ME BY THE WORLD'S MEASURING STICK,
WHAT I DO KNOW IS INFINITE JOY IN SIMPLE THINGS.
I AM NOT BURDENED AS YOU ARE WITH THE STRIFE'S AND CONFLICTS OF A
MORE COMPLICATED LIFE.
MY GIFT TO YOU IS TO GRANT YOU THE FREEDOM TO ENJOY THINGS AS A
CHILD,
TO TEACH YOU HOW MUCH YOUR ARMS AROUND ME MEAN, TO GIVE YOU LOVE.
I GIVE YOU THE GIFT OF SIMPLICITY.
I AM THE CHILD WHO IS MENTALLY IMPAIRED.
I AM THE DISABLED CHILD.
I AM YOUR TEACHER. IF YOU ALLOW ME,
I WILL TEACH YOU WHAT IS REALLY IMPORTANT IN LIFE.
I WILL GIVE YOU AND TEACH YOU UNCONDITIONAL LOVE.
I GIFT YOU WITH MY INNOCENT TRUST, MY DEPENDENCY UPON YOU.
I TEACH YOU ABOUT HOW PRECIOUS THIS LIFE IS AND ABOUT NOT TAKING
THINGS FOR GRANTED.
I TEACH YOU ABOUT FORGETTING YOUR OWN NEEDS AND DESIRES AND DREAMS.
I TEACH YOU GIVING.
MOST OF ALL I TEACH YOU HOPE AND FAITH.
I AM THE DISABLED CHILD.
AUTHOR UNKNOWN
Friday, March 7, 2008
Starting Over....Again
We got Chase's test results back and here is what they say, not a lot of anything. I am really beginning to lose confidence in doctors, but then again what mother with an autistic child hasn't at some point in time. Basically all it really said was his levels are within the normal range so now I have to request more tests. I was advised to request the ELISA which is what I thought I was getting in the beginning but I was wrong, so I will have to start another fight and become the "crazy" mom. My decision in the end? We are going back on the GF/CF diet, everyone is. I called and made Spencer and Calista appointments for referrals to the allergist and we know that Trinity can't have wheat, eggs and casein so we are all going to go on the diet and see what happens. I know it won't hurt it is just going to be hard, but I am the adult in the situation and I should be the strong one not Chase, it is my turn to start winning some battles. I will document things as they go with everyone not just Chase. I am antispating a really bumpy ride but I am strapped in for life.
Tuesday, March 4, 2008
The Allergist
Yesterday was our allergist appointment. Now we wait. He had no reaction to any of the skin test so they ordered some labs to be run, now we wait. I am really excited to see what the results are and it already seems like it is going to take forever.
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